Memory Care at Home STL

St. Louis and the surrounding counties

This site is about non-medical support in a person's own home. It is not about residential memory care facilities, and it does not rate any.

Read this first

This is the one page on this site that is asking you to do something, and the something is not to hire anybody. It is to raise the subject at a medical appointment.

We are not clinicians and this page contains no medical advice. It cannot tell you what is happening to the person you care for, and it does not try. That is the point it is making.

The rest of the site starts at the front page.

Only about a third have talked to a doctor about it

Of the older Missourians who say their memory is getting worse, most have never mentioned it to a doctor. That is the most actionable finding in the whole survey.

Families put this conversation off for reasons that are entirely human. Nobody wants to be the person who suggests it. There is a fear that saying it out loud will make it real, or will hurt somebody's dignity, or will start a process that ends with a decision the family is not ready for.

There is also a quieter reason, and it is the one worth dismantling. A lot of people assume that raising it is pointless, because everybody knows there is nothing to be done. That assumption is the single most costly thing on this page, and it is wrong in a way that matters.

It is wrong because memory change has many causes and some of them are treatable, and because the ones that are not treatable are still much easier to live with when they have been named. Either way, the appointment is worth having, and it is worth having earlier than most families have it.

What the survey found

The same CDC survey that asks older adults whether their memory is getting worse asks a follow-up of the people who say yes: have you talked with a health care professional about it.

In Missouri, 35.3 percent said they had. The confidence range the CDC publishes for that estimate runs from 28.6 to 42.5 percent. Illinois reports 42.5 percent, with a range from 28.8 to 57.5 percent.

Turned around, that Missouri figure says that roughly two out of every three older adults in this state who know their memory is getting worse have not raised it with anyone qualified to look at it. Whatever else this site says, that is the gap worth closing.

Why a website is the wrong place for this

We want to be blunt about our own limits, because a page like this one can do real harm by being reassuring.

Changes in memory and thinking can have a lot of different causes, and the National Institute on Aging's public page on memory, forgetfulness and ageing is a reasonable, plain-language place to read about what does and does not tend to be part of ordinary ageing. The Alzheimer's Association separately publishes its list of ten warning signs, and an explanation of what dementia is.

None of those pages, and certainly not this one, can tell you which cause applies to one particular person. Only an evaluation can do that, and the NIA describes what one involves in its page on how Alzheimer's disease is diagnosed. Reading is preparation for the appointment. It is not a substitute for it, and treating it as one is how families lose a year.

The sentence that starts it

Families get stuck on how to open the subject. It does not need to be elegant. Something as flat as we have noticed some changes in memory over the past year and we would like you to take a look is enough, and it is easier to say if it has been agreed in advance with everyone who is going to be in the room.

Preparing for the appointment

Appointments are short and this subject is easy to run out of time on, so the preparation is worth doing properly. The National Institute on Aging publishes public guidance on how to prepare for a doctor's appointment, a separate page for family members on taking someone to a doctor's appointment, and a set of printable talking with your doctor worksheets.

The practical thread running through all of it is that specifics beat impressions. What changed, when it started, how often it happens, whether it is getting worse. A list of everything the person takes, including anything bought over the counter. Somebody in the room who is there to write things down. Those are the things that turn a vague appointment into a useful one.

If a caregiver is already coming to the house, their handover notes are unusually good raw material for this, which is one of the quieter arguments for keeping them.

And afterwards

Whatever the appointment concludes, the day-to-day question does not go away, and the two are separate. A doctor deals with the cause. A household still has to get through Tuesday.

That second half is what the rest of this site is about: what a day of support at home involves, and what the survey says about how many people reach the point of needing help day to day. For the wider question of staying at home as people age, Aging in Place STL covers ground this site does not, and if you are still working out which category of service you need, the home health versus home care comparison on Home Care Check STL is the place to start.